A family of seven holding hands and walking in a field during sunset, with a child sitting on an adult's shoulders.

What We Offer

Leo's Light (Nance-Horan Syndrome Foundation) exists to support families affected by Nance-Horan Syndrome through education, community, and advocacy. We provide accurate, accessible information about NHS; connect families navigating diagnosis and treatment; assist with financial barriers to medical care and therapy; and promote research to improve outcomes for all individuals living with this condition.

  • The Problem: Newly diagnosed families encounter outdated information, worst-case scenarios in medical literature, and no peer support network.

    Our Solution:

    • Centralized, accurate information hub with family-friendly resources

    • Family-to-family mentorship connecting newly diagnosed families with experienced ones

    • Comprehensive resource guides for navigating therapies, vision care, and developmental support

    • Regular virtual meetups and potential annual family conferences

    • Private Facebook community (currently 60+ families) integrated with foundation resources

  • The Problem: NHS is understudied, with limited research funding and many physicians unfamiliar with the condition.

    Our Solution:

    • Partnerships with researchers and medical institutions studying NHS

    • Educational materials for healthcare providers (diagnostic guides, treatment protocols)

    • Awareness campaigns to improve early diagnosis and intervention

    • Guidance on navigating difficulty with insurance providers

Let’s Connect

If you're interested in working with us, complete the form with a few details about your project. We'll review your message and get back to you within 48 hours.