A woman doctor sitting on a rolling stool in a medical office, holding a small child on her lap, while working on a computer. The woman is smiling, and the child is looking to the side. Medical equipment and cabinets are visible in the background.

Mission Statement

Leo's Light (The Nance-Horan Syndrome Foundation) exists to support families affected by Nance-Horan Syndrome through education, community, and advocacy. We provide accurate, accessible information about NHS; connect families navigating diagnosis and treatment; assist with financial barriers to medical care and therapy; and promote research to improve outcomes for all individuals living with this condition.

Meet the Board

  • A young woman with light brown hair, smiling, wearing a dark checked blazer and white top, standing in an indoor setting.

    Jordan Schulte

    Founder and President

    Mom to Leo

  • A man with short brown hair and glasses, wearing a suit, blue shirt, and pink tie, smiling against a dark background.

    Patrick Schulte

    Vice President

    Dad to Leo

  • A woman with blonde hair and sunglasses holding a young boy with glasses, both smiling outdoors with trees and buildings in the background.

    Jazmin Jones

    Treasurer

    Mom to Chaz

  • A smiling woman with blonde hair and glasses, wearing a beige blazer and black top, in a well-lit indoor setting with large windows.

    Danielle Steed

    Director

    Chair of Outreach & Programming Committee