Welcome to Leo’s Light
The Nance-Horan Syndrome Foundation
Help us light the way forward.
Why Leo’s Light Exists
When our son Leo was diagnosed with Nance-Horan Syndrome, at 23 weeks gestation, we couldn't find the support we desperately needed. Within a year, we connected 60+ families facing the same isolation. Leo's Light exists to ensure no family navigates this diagnosis alone. We provide education and a community that understands.