Welcome to Leo’s Light

The Nance-Horan Syndrome Foundation

Help us light the way forward.

Why Leo’s Light Exists

When our son Leo was diagnosed with Nance-Horan Syndrome, at 23 weeks gestation, we couldn't find the support we desperately needed. Within a year, we connected 60+ families facing the same isolation. Leo's Light exists to ensure no family navigates this diagnosis alone. We provide education and a community that understands.

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