What We Offer
Leo's Light (Nance-Horan Syndrome Foundation) exists to support families affected by Nance-Horan Syndrome through education, community, and advocacy. We provide accurate, accessible information about NHS; connect families navigating diagnosis and treatment; assist with financial barriers to medical care and therapy; and promote research to improve outcomes for all individuals living with this condition.
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The Problem: Newly diagnosed families encounter outdated information, worst-case scenarios in medical literature, and no peer support network.
Our Solution:
Centralized, accurate information hub with family-friendly resources
Family-to-family mentorship connecting newly diagnosed families with experienced ones
Comprehensive resource guides for navigating therapies, vision care, and developmental support
Regular virtual meetups and potential annual family conferences
Private Facebook community (currently 60+ families) integrated with foundation resources
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The Problem: NHS is understudied, with limited research funding and many physicians unfamiliar with the condition.
Our Solution:
Partnerships with researchers and medical institutions studying NHS
Educational materials for healthcare providers (diagnostic guides, treatment protocols)
Awareness campaigns to improve early diagnosis and intervention
Guidance on navigating difficulty with insurance providers
Let’s Connect
If you're interested in working with us, complete the form with a few details about your project. We'll review your message and get back to you within 48 hours.